Friday, April 17, 2009


As we said in the last "update" post we have been waiting on results from Owen's latest labwork to determine if he has a "fatty acid oxidation disorder". Well the results finally came in today and apparently he does have one of the fatty acid disorders. The labs show that Owen has Long Chain 3-hydroxyacyl-CoA dehydrogenase deficiency (LCHAD). We are not sure exactly what this means for all of us just yet, but we have an appointment with the geneticist at Children's in Little Rock on Monday at 12:00 to hopefully find out everything there is to know about living with this disorder. From what we can find, it looks like the main treatment is adjusting diet and making sure that he never goes without eating for extended periods. These are not the results we were hoping to get; however, we are glad to finally know something and have a direction to go.

Meanwhile Owen is still looking great to us. He is eating well and either his clothes are shrinking or he is getting bigger... (We think he's getting bigger). He is the light of our lives and we are blessed to have him in our lives.

Thanks for all of your thoughts and prayers and please continue to pray for Owen's health and our ability to provide the best care we can for him.


Angie Cleary said...

I am so sorry to hear this news. It is so ironic that people of medical profession always seem to be the ones that have to most trouble with medical issues. Your family and Owen continue to be in my prayers. Best wishes for an well informed appt on Monday and I am praying for the wisdom of your specialist. I know Owen is still very young, but once you get some solid answers, I would begin every early intervention possible and get started with all resources possible. Although I'm not familiar with LCHAD, If you need any help regarding resources or anything, I've been through the trenches and back and do not mind at all to give any information I can to help.( Lifting your family up in prayer.

Cindy Watson said...

He looks great to me too! I will continue to pray for him and you and Josh as well. Love you guys!

Amber said...

Love you guys and will really be praying for a great appt on Monday. I am so glad Owen has such awesome parents who are going to get the very best care for him.

He is beautiful!

The Spencer's

RachelM said...

We will definitely keep y'all in our prayers for tomorrow's appt.